Seizure Salad (~Fustercluck Epilepticus~)

B-Side Diaries: June 5th, 2024

Joining the working world again... uffda.
 
Produced & hosted by Micah Ball
Original Logo Design by Alba "Lupi" Lopez
The song “Seizure Boy” courtesy of Watsky, and used with permission
 
Mad Gratitude!
~Micah
Unexpect the Expected

B-Side Diaries: March 2024

Knocked down but not out. 
“Seizure Salad, ~Fustercluck Epilepticus~”, is produced & hosted by Micah Ball
Original Logo and Graphic Design by Alba "Lupi" Lopez
The song “Seizure Boy” courtesy of Watsky, and used with permission. Find more great music & poetry on his website, GeorgeWatsky.com
 
Thanks for listening!
Mad Gratitude,
~Micah
Unexpect the Expected
 

"New Normal" by Ullie Kaye

Loneliness of Healing

B-Side Diaries: Jan 15th - happy birthday to the King!

I enjoy sharing a birthday with the Reverend Martin Luther King Jr.  (Tha man!!!)

B-Side Diaries: November 30th, 2023

Gone too long, and catching you up on what's been going on... 
 
“Seizure Salad, ~Fustercluck Epilepticus~” is produced & hosted by Micah Ball
Original Logo and Graphic Design by Alba "Lupi" Lopez
The song “Seizure Boy” courtesy of Watsky, and used with permission. Find more great music & poetry on his website, GeorgeWatsky.com
 
Thanks for listening!
Mad Gratitude,
~Micah
Unexpect the Expected

August 2023: Breakthroughs

~I am done with fear.
~Moving from reaction to response.
~Building gratitude. 
~Knowing what you love.
~I LOVE being able to work again 
 
“Seizure Salad, ~Fustercluck Epilepticus~” is produced & hosted by Micah Ball
Original Logo and Graphic Design by Alba "Lupi" Lopez
The song “Seizure Boy” courtesy of Watsky, and used with permission. Find more great music & poetry on his website, GeorgeWatsky.com
 
Thanks for listening!
Mad Gratitude,
~Micah
Unexpect the Expected

B-Side Diaries: June 21st, 2023

~Ch-ch-ch-Changes!  plus...
~Road Trips.
~Summer Solstice & 9 months seizure free!
 
“Seizure Salad, ~Fustercluck Epilepticus~”, is produced & hosted by Micah Ball
Original Logo and Graphic Design by Alba "Lupi" Lopez
The song “Seizure Boy” courtesy of Watsky, and used with permission. Find more great music & poetry on his website, GeorgeWatsky.com
 
Thanks for listening!
Mad Gratitude,
~Micah
Unexpect the Expected

Decoding Epilepsy with Dr. Dee McKnight

We've talked about genomics in relation to medications, and precision medicine using DNA panels.  In this episode, we narrow it down with Dee McKnight, a genetic specialist in the epilepsy community.  Dee has been a part of the effort to bring genetic testing as a common diagnostic practice from the early days.  Enjoy this eye-opening episode, and share with everyone, as it has the possibility to save lives.
Here are links to the papers Dee references in our conversation:
Mostly kid's testing results: https://onlinelibrary.wiley.com/doi/10.1002/epi4.12348
Adult epilepsy study: https://ng.neurology.org/content/8/1/e650
Doctor's changes to clinical management and patient outcomes study: https://jamanetwork.com/journals/jamaneurology/fullarticle/2797510
 
Dr. Dee McKnight is board-certified in clinical molecular genetics by the American Board of Medical Genetics and Genomics. She has more than 10 years of experience in the genetic diagnostics field and is currently a Senior Medical Affairs Director at Invitae. Prior to joining Invitae, Dr. McKnight was the director of the neurogenetics testing program at GeneDx, where she specialized in genetic testing for patients with epilepsy and intellectual disability. Dr. McKnight earned her doctorate degree at Penn State University and completed post-doctoral training at the NIH. While at the NIH, she was a research fellow at the National Institute of Dental and Craniofacial Research for 5 years, during which she also completed her board-accredited clinical molecular genetics training fellowship at the National Human Genome Research Institute.
“Seizure Salad, ~Fustercluck Epilepticus~”, is produced & hosted by Micah Ball
Original Logo and Graphic Design by Alba "Lupi" Lopez
The song “Seizure Boy” courtesy of Watsky, and used with permission. Find more great music & poetry on his website, GeorgeWatsky.com
 
Thanks for listening!
Mad Gratitude,
~Micah
Unexpect the Expected