Seizure Salad (~Fustercluck Epilepticus~)

Decoding Epilepsy with Dr. Dee McKnight

We've talked about genomics in relation to medications, and precision medicine using DNA panels.  In this episode, we narrow it down with Dee McKnight, a genetic specialist in the epilepsy community.  Dee has been a part of the effort to bring genetic testing as a common diagnostic practice from the early days.  Enjoy this eye-opening episode, and share with everyone, as it has the possibility to save lives.
Here are links to the papers Dee references in our conversation:
Mostly kid's testing results: https://onlinelibrary.wiley.com/doi/10.1002/epi4.12348
Adult epilepsy study: https://ng.neurology.org/content/8/1/e650
Doctor's changes to clinical management and patient outcomes study: https://jamanetwork.com/journals/jamaneurology/fullarticle/2797510
 
Dr. Dee McKnight is board-certified in clinical molecular genetics by the American Board of Medical Genetics and Genomics. She has more than 10 years of experience in the genetic diagnostics field and is currently a Senior Medical Affairs Director at Invitae. Prior to joining Invitae, Dr. McKnight was the director of the neurogenetics testing program at GeneDx, where she specialized in genetic testing for patients with epilepsy and intellectual disability. Dr. McKnight earned her doctorate degree at Penn State University and completed post-doctoral training at the NIH. While at the NIH, she was a research fellow at the National Institute of Dental and Craniofacial Research for 5 years, during which she also completed her board-accredited clinical molecular genetics training fellowship at the National Human Genome Research Institute.
“Seizure Salad, ~Fustercluck Epilepticus~”, is produced & hosted by Micah Ball
Original Logo and Graphic Design by Alba "Lupi" Lopez
The song “Seizure Boy” courtesy of Watsky, and used with permission. Find more great music & poetry on his website, GeorgeWatsky.com
 
Thanks for listening!
Mad Gratitude,
~Micah
Unexpect the Expected

B-Side Diaries, March 25th 2023: On the Road Again?!?

6 months seizure-free, able to drive again, and getting deep-brain therapy.
I set up a GoFundMe to be able to get a van, to build into a mobile recording studio & camper/caver condo!  You can help me regain my independence and the ability to travel for work by donating here: 
https://gofund.me/eaf6c9a6
Please & Thank You!
Micah
“Seizure Salad, ~Fustercluck Epilepticus~”, is produced & hosted by Micah Ball
Original Logo and Graphic Design by Alba "Lupi" Lopez
The song “Seizure Boy” courtesy of Watsky, and used with permission. Find more great music & poetry on his website, GeorgeWatsky.com
 
Thanks for listening!
Mad Gratitude,
~Micah
Unexpect the Expected

Random Fustercluckery with Mitch & Jacob: March 2023 - Part 2

Mitch & Jacob kick back with me and sesh on topics including:  Serving our country, resetting the subconscious mind, creating positive impact, and random tangents like air-compressors
Help support Mitch's fundraiser so he can continue to help community & families heal from Trauma!  Donate to "Reboot Recovery, Overcoming Trauma Together" here: https://rebootrecovery.donorsupport.co/-/NNHFWZXX?member=SQMAQJPT 
 
“Seizure Salad, ~Fustercluck Epilepticus~”, is produced & hosted by Micah Ball
Original Logo and Graphic Design by Alba "Lupi" Lopez
The song “Seizure Boy” courtesy of Watsky, and used with permission. Find more great music & poetry on his website, GeorgeWatsky.com
 
Thanks for listening!
Mad Gratitude,
~Micah
Unexpect the Expected

Random Fustercluckery with Mitch and Jacob - March 2023, Part 1

Mitch & Jacob kick back with me and sesh on topics like: purpose, giving back & paying forward, mindset & neuroplasticity, and guns in Switzerland(?!?)
 
Help support Mitch's fundraiser to help community & families heal from Trauma!  Donate to "Reboot Recovery, Overcoming Trauma Together" here: https://rebootrecovery.donorsupport.co/-/NNHFWZXX?member=SQMAQJPT 
 
“Seizure Salad, ~Fustercluck Epilepticus~”, is produced & hosted by Micah Ball
Original Logo and Graphic Design by Alba "Lupi" Lopez
The song “Seizure Boy” courtesy of Watsky, and used with permission. Find more great music & poetry on his website, GeorgeWatsky.com
 
Thanks for listening!
Mad Gratitude,
~Micah
Unexpect the Expected

Misdiagnosis Rollercoaster w/ Jesse Mercury of the Major Pain Podcast

~ Jesse & I sit down to talk about his lifelong misdiagnosis of a chronic condition, his podcast & other creative endeavors, and of course a bit of off-topic banter!  Enjoy! ~
Jesse Mercury is the host & producer of the podcast, Major Pain, as well as a prolific content creator & musician. Jesse’s content library can be found on Bandcamp, YouTube, TikTok, and his website www.jessemercury.com."
 
Listen to Jesse's podcast, just click on his logo below!
"The Major Pain podcast is a collection of interviews from people living with chronic illness and disability. Our goal is to spread awareness, empathy and community around experiences often lived through in isolation. We also occasionally hear from healthcare professionals, pain researchers and caregivers, giving us a well-rounded view of what’s happening in our healthcare system for the chronically ill. Through sharing these stories important themes have become increasingly apparent, including the dangers of medical gaslighting, the importance of self-advocacy and the fact that none of us are in this alone. You can share your thoughts, your story, or inquire about appearing on the show at majorpainpodcast@gmail.com.
 
“Seizure Salad, ~Fustercluck Epilepticus~”, is produced & hosted by Micah Ball
Original Logo and Graphic Design by Alba "Lupi" Lopez
The song “Seizure Boy” courtesy of Watsky, and used with permission. Find more great music & poetry on his website, GeorgeWatsky.com
 
Thanks for listening!
Mad Gratitude,
~Micah
Unexpect the Expected

Take 5 with Maria Mayes

Maria Mayes is a Well-Being Coach and teacher who is on a mission to help others take their power back from anxiety. She specializes in simplifying techniques and ancient wisdom teachings into small digestible bites that are easy to apply, through her signature Take 5 Stretch & Breath Breaks and Wine & Well-Being Workshops. Maria is Certified through Chopra Global in Coaching, Meditation and Ayurveda and is an RYT200 Yoga Teacher with specialty training in mental health, neuroscience and applied poly-vagal theory.
Join us as we learn more about Maria's personal history with misdiagnosis and seizures, and what she learned through self-compassion & mindfulness.  Learn more about Maria at https://www.take5.health/ , and you can sign up for a free Take 5 here: https://view.flodesk.com/pages/63335fcdd960dab4eb97c81b   
Thanks for listening!
“Seizure Salad, ~Fustercluck Epilepticus~”, is produced & hosted by Micah Ball
Original Logo and Graphic Design by Alba "Lupi" Lopez
The song “Seizure Boy” courtesy of Watsky, and used with permission. Find more great music & poetry on his website, GeorgeWatsky.com
 
Mad Gratitude!
~Micah
Unexpect the Expected
 

Len May on Precision Medicine, Cannabis, & DNA

Len May is CEO and Co-Founder of EndoCanna Health, and held past positions as President of the CannabisAction Network and Board Member/Lifetime Member of the California Cannabis Association. Len currently serves as chair of the CBDIA science board, and is a stakeholder in some of the industry’s most iconic cannabis-based brands. His expertise includes the workings of the endocannabinoid system and how genetic expression plays a role in human experiences. As a Certified Medical Cannabis Specialist in Medicinal Genomics, Len has an in-depth knowledge of genomics, cannabinoids and terpenes, and their interaction with the endocannabinoid system. Learn more about him & his company here:  https://endodna.com/  
Len is also author of the book "Making Cannabis Personal", available on Amazon: https://www.amazon.com/Making-Cannabis-Personal-Guesswork-Experience/dp/1953153410 
And if he's not already busy enough, Len also has a podcast: "Everything Is Personal", available on Apple & Spotify.
 
“Seizure Salad, ~Fustercluck Epilepticus~”, is produced & hosted by Micah Ball
Original Logo and Graphic Design by Alba "Lupi" Lopez
The song “Seizure Boy” courtesy of Watsky, and used with permission. Find more great music & poetry on his website, GeorgeWatsky.com
 
Thanks for listening!
Mad Gratitude,
~Micah
Unexpect the Expected

Mind Over What Matters, with Dan MacQueen

Dan has survived two emergency brain surgeries, weeks in a coma, and months in a rehab hospital. What he found out along the way might surprise you: there is nothing like a brain injury to refocus the mind! Driven by a positive mindset, Dan battled through excruciating rehab exercises to rebuild his life and return to a job he loved.He’s grateful for the doctors who saved him and the friends and family who supported him. Now he wants to pay it forward.
https://www.linkedin.com/in/danielmacqueen/ 
~Ice-Breakers & Gamification ~Turning down the "Suck" ~It's not your fault, however it IS your responsibility!
 
“Seizure Salad, ~Fustercluck Epilepticus~”, is produced & hosted by Micah Ball
Original Logo Design by Alba "Lupi" Lopez
The song “Seizure Boy” courtesy of Watsky, and used with permission. Find more great music & poetry on his website, GeorgeWatsky.com
 
Thanks for listening!
Mad Gratitude,
~Micah
Unexpect the Expected